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Cathy McClive's avatar

Thanks so much for your posts which are really helpful. Struggling with LC and dysautonomia so very much looking forward to your next post on how to use functional tests and nutrition to make improvements. Thanks again for sharing your knowledge and experience.

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Dysautonomia Dietitian's avatar

Hi Cathy! Thank you so much for your kind words. I just posted an article on foundational strategies for managing LC and dysautonomia, and I’m working on two more parts for this series—one focused on symptom management during flare-ups and another on addressing the underlying causes of LC, which will include functional lab tests. I hope the upcoming posts can offer you some helpful insights!

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Kellie price's avatar

I’ve been seeing the doctors. I’ve had a spinal fusion because of the nerve pain in my back was so bad I could no longer walk. I now have emphysema and scarring on the lungs. Chronic fatigue racing heart constant fatigue etc. The doctors won’t talk about long Covid or vaccine injury.. how are you able to get them to take you seriously? What test we’re done?

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Dysautonomia Dietitian's avatar

I’m so sorry you’re going through this. I also struggled with doctors not taking me seriously, and I know how frustrating that can be. If you have access to a long COVID clinic, that’s often the best approach since they have a multidisciplinary team experienced in managing this complex condition. Unfortunately, I didn’t have one in my area.

Long COVID affects everyone differently and requires an individualized approach. I’m posting an article this week that will help explain long COVID, and the following post will cover what I did to improve my condition. As a dietitian, I ordered my own labs out of pocket—checking for nutrient deficiencies as a baseline and using the Metabolomix test to confirm mitochondrial dysfunction. This helped me take a more targeted approach to support recovery. I hope these upcoming posts provide useful insights as you navigate your own health journey. Sending you love!

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